Publications/Materials

Resources

Helpful Links

Just because you read it on the Internet does not necessarily make it a fact. Please make sure your information comes from reputable sites. University based sickle cell centers are an excellent source of reliable information on current sickle cell education, research, and care.

• St. Jude - The St. Jude website contains facts about sickle cell trait and sickle cell disease. Also, the site contains information regarding other rare hemoglobin types such as hemoglobin C, hemoglobin D, hemoglobin E, beta thalassemia, and alpha thalassemia.
• Sickle Cell Information Center . The most comprehensive link for sickle cell education, information and research can be found at the Sickle Cell Information Center. The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. This is your one stop link.
  Grady Memorial Hospital, Atlanta, GA
• SickleCellKids.org is a user friendly web site to teach children, teachers and parents all about living with sickle cell disease.

National Organizations

• Centers for Disease Control and Prevention - Visit this website to learn about sickle cell disease/sickle cell trait, to print free educational materials, and to access data and statistics related to sickle cell disease.
• National Heart, Lung, and Blood Institute (NHLBI) , a part of the Federal Government's National Institutes of Health.
  Sickle Cell Disease Scientific Research Group
• Sickle Cell Disease Association of America
  A state by state listing of member chapters where you can obtain sickle cell information and local referrals is located on their website.
  
• The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics.
  The mission of the NNSGRC is to: provide a forum for interaction between consumers, health care professionals, researchers, organizations, and policy makers in refining and developing public health newborn screening and genetics programs; and to serve as a national resource center for information and education in the areas of newborn screening and genetics.