Publications/Materials

Publications/Materials

A Counseling Handbook for Sickle Cell and Other Hemoglobinopathies

The Virginia Sickle Cell Awareness Program
A complete guide for counseling and education for the most common hemoglobin variants identified through Virginia's sickle cell screening program.

Parent Handbook

• Parent Handbook Part I
• Parent Handbook Part II

Sickle Cell Transition Intervention Program: Bridging the Gap Between Pediatric and Adult Care

• Introduction and Section 1: Health Maintenance(PDF)
• Section 2: Education and Vocation(PDF)
• Section 3: Health Benefits(PDF)
• Section 4: Social Support(PDF)

Fast Facts Series

• Hemoglobin A/S - Sickle Cell Trait
• Hemoglobin A/S - Sickle Cell Trait(Espanol)
• Hemoglobin A/C - C-Trait(Espanol)
• Hemoglobin Barts
• Beta Thalassemia
• Hemoglobin A/ Adult Variant

School Related Issues

• Understanding Sickle Cell Disease: A Handbook for School Personnel

Reports

• Report to the House Appropriations and Senate Finance Committees of the Virginia General Assembly on Community-based Sickle Cell Programs

Professional: Clinical Guidelines and Tools

Health Supervision for Children with Sickle Cell Disease
American Academy of Pediatrics
Policy Statement
Pediatrics, Volume 109, Number 3
March 2002, pp 526-535

Critical Elements of Care on Sickle Cell
Center for Children with Special Needs
Children's Hospital and Regional Medical Center Seattle, WA